I’m going to start off by saying, no, this is not going to be me complaining, nor am I claiming to be hard done by, but on behalf of both myself and my dear friends who suffer with chronic illnesses, I feel obliged to write this post.
I don’t have it hard, but I don’t have it easy either. Illness is rubbish and despite those that I do have, I am very, very lucky when it comes to health, but some people very close to me suffer much worse than I do, however, I still get them and how they feel.
As you may have seen in my previous blog posts or on my social media, I am currently on crutches, thanks to my good friend hypermobility. You may or may not have heard of it, but it’s a lovely condition where I have what is referred to as ‘Ehlers-Danlos Syndrome’ and it isn’t the easiest of things. I am chronically fatigued, my organs like to give me a shock every once in a while (the regular blackouts, the daily palpitations and chest pains) and my joints don’t like to… Well, join. I also have the joys of chronic migraines, asthma, and mental health issues which I will never be able to escape and are, once more, debilitating daily.
Now, this sounds like nothing, and yes, compared to someone I know, my health is flawless, but it doesn’t mean I don’t struggle. Especially as I’m having a rather bad EDS flare currently, which I suppose is what caused the displacement of my hip.
Now, a dear friend of mine tweeted me something that sparked something. I totally appreciate the gesture and love, but the fact that I wish the earth’s magic powers could do this angered me.
I was, essentially, told ‘I hope the Christmas spirit makes you better!’
I really don’t think I can put my hip back into place with a candy cane, or my codine will suddenly have fairy dust in it, or the elves’ cookies will stop me from blacking out multiple times a day and forgetting 90% of what I want or need to say before saying it, or I’ll be any less tired because of Santa Claus. I am physically broken and suffering with a chronic syndrome that’s going to follow me in my joints and organs for the rest of my life.
I speak on behalf of anyone suffering with a chronic illness, be it moderate or severe- you are all so valid and do not deserve any of this- but we would appreciate the understanding. We also do appreciate the love and support.
Thank you for reading this. It’s very important.
On a lighter note, here are my crutch festivities!