Rare diseases. They're called 'rare' for a reason, and not usually talked about much, apart from on said awareness days or weeks where people care for the most minuscule of moments. One thing that will always resonate with me was an experience I had in my last year of sixth form. I remember, one day… Continue reading Rare disease talks in mainstream media (BBC Casualty and Ehlers-Danlos Syndrome)
If you've read my blog before, or even just Thursday's post for International Women's Day, you know that in my eyes, you are not a feminist if you do not support all intersections of society.That is why Barbie's new collection of feminist icon dolls has straight up angered me so very much. The Public's VerdictOnline,… Continue reading Why I’m Upset By Mattel’s New ‘Inspiring Women’ Barbie Collection
So. 2017 was a pretty rough year, come to think of it. I did in fact gain a lot and overcome some hurdles, but in the grand retrospect that is my life, many, many events totally changed my plans, future, and I found myself feeling very lost a lot of the time. A few days… Continue reading Things I want to do more of in 2018
The guide On twitter, two things have been going around recently; first is the above guide for pain, and second the #MyPainDay diaries tag. Upon request, and being a spoonie blog apt for awareness, I have decided to contribute over here. This above guide is SO important. Many disabled and chronically ill folk play down… Continue reading My Pain Day (Dec week 1)
Tonight is Children in Need, and despite being at home, I won't be watching. My family (who should have understood) had a go at me when I asked if we could turn off a segment of The One Show re: CiN; "That's so insensitive"/"ignorant", I could throw a whole lot of the arguments they threw… Continue reading How to support Children in Need (without being triggered)
THIS is what Invisibly Disabled looks like*: Spoiler alert if you hadn't realised... it's me. This is me on some days, one would argue like an able bodied person: And on others, here I am: I have chosen to share this picture as on a typical day with mobility aids, it is a stick I… Continue reading Invisible Disabilities Week: My Chronic Life and an introduction to Spoonie Saturdays
a note on social care with a focus on the elderly and their state of mind.