On what is not far off of the year anniversary for my 'Rare Disease Talks' post where I spoke about BBC's Casualty's representation of Ehlers-Danlos Syndrome, Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (PoTS), I'm back with another*. This one varies slightly, with the representation being served upon a reality television show, but I think this… Continue reading Rare Disease Talks: RuPaul’s Drag Race (2019)
I vouched at the beginning of last year that i'd be transparent on mental health, disability, recovery, and even started an instagram account to log all of that. Ironically, it's chronic illness that's caused the downfall of that account due to a lack of spoons to post and update, constant brain fog and a lack… Continue reading The Side Of Chronic Illness You Don’t See On The Internet
Rare diseases. They're called 'rare' for a reason, and not usually talked about much, apart from on said awareness days or weeks where people care for the most minuscule of moments. One thing that will always resonate with me was an experience I had in my last year of sixth form. I remember, one day… Continue reading Rare Disease Talks: BBC Casualty (2018)
There is one phrase I live by when times are tough; "Nourish your soul." Primarily, I began to use this for bopo purposes, in the sense of 'nourish your body', without allowing it to be exclusive; because when the ED hits and thoughts are spiralling round, nourishing your body can seem like a toxic idea.… Continue reading Nourish your feed, nourish your soul: #SockItToEatingDisorders
26th February marked the beginning of a very important week; Eating Disorder Awareness Week. If you don't do anything else this week, I ask just one thing of you: To be aware. Not everyone will be comfortable enough to share their stories. Not everyone will have the emotional energy- whether it's the ED that sucks… Continue reading On Eating Disorder Awareness Week, be aware.