On what is not far off of the year anniversary for my 'Rare Disease Talks' post where I spoke about BBC's Casualty's representation of Ehlers-Danlos Syndrome, Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (PoTS), I'm back with another*. This one varies slightly, with the representation being served upon a reality television show, but I think this… Continue reading Rare Disease Talks: RuPaul’s Drag Race (2019)
This month, I'm asking you to be aware of the chronic and mental health conditions I battle with, and educate yourself.
I vouched at the beginning of last year that i'd be transparent on mental health, disability, recovery, and even started an instagram account to log all of that. Ironically, it's chronic illness that's caused the downfall of that account due to a lack of spoons to post and update, constant brain fog and a lack… Continue reading The Side Of Chronic Illness You Don’t See On The Internet
(1/2) As a disabled person, you get a lot of people knowing little about you casting judgement. Sometimes this is as you're merely going about your day, and sometimes it's facing accessibility issues; unfortunately, yes, they are intertwined more than one would hope, but today I'm here to speak of the former. I'm using this… Continue reading Everyday discrimination.
Gosh. Christmas is over. It's been a chaotic blur of working, sleeping, many cups of coffee and spending unrealistic amounts on my loved ones. But so what? It's Christmas! The New Year is heading our way and it won't be long until retailers stock up on their next occasion's merchandise (Valentines comes to mind). Time… Continue reading Christmas 2017 for me: everything from veganism to working in retail
The guide On twitter, two things have been going around recently; first is the above guide for pain, and second the #MyPainDay diaries tag. Upon request, and being a spoonie blog apt for awareness, I have decided to contribute over here. This above guide is SO important. Many disabled and chronically ill folk play down… Continue reading My Pain Day (Dec week 1)
THIS is what Invisibly Disabled looks like*: Spoiler alert if you hadn't realised... it's me. This is me on some days, one would argue like an able bodied person: And on others, here I am: I have chosen to share this picture as on a typical day with mobility aids, it is a stick I… Continue reading Invisible Disabilities Week: My Chronic Life and an introduction to Spoonie Saturdays
Today marks 69 years since the National Health Service was formed. This is a non-political, solely emotional article about it's importance.
Today, May 12th, is ME awareness day. ME stands for Myalgic Encephalomyelitis, which you may also have heard of as Chronic Fatigue Syndrome. A lot of people, myself included, like to refer to it as ME rather than CFS as CFS doesn't quite encapture the chronic pain, the real exhaustion and the debilitating nature of… Continue reading ME awareness day