I want to post this not as a justification, but as a note to those in the same boat as me that you're not alone and we should be proud of all we've been done and are doing into the future. This morning, I recieved a fair few amount of messages questioning me on something… Continue reading The Medical Mandate
On what is not far off of the year anniversary for my 'Rare Disease Talks' post where I spoke about BBC's Casualty's representation of Ehlers-Danlos Syndrome, Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (PoTS), I'm back with another*. This one varies slightly, with the representation being served upon a reality television show, but I think this… Continue reading Rare Disease Talks: RuPaul’s Drag Race (2019)
This month, I'm asking you to be aware of the chronic and mental health conditions I battle with, and educate yourself.
I vouched at the beginning of last year that i'd be transparent on mental health, disability, recovery, and even started an instagram account to log all of that. Ironically, it's chronic illness that's caused the downfall of that account due to a lack of spoons to post and update, constant brain fog and a lack… Continue reading The Side Of Chronic Illness You Don’t See On The Internet
(1/2) As a disabled person, you get a lot of people knowing little about you casting judgement. Sometimes this is as you're merely going about your day, and sometimes it's facing accessibility issues; unfortunately, yes, they are intertwined more than one would hope, but today I'm here to speak of the former. I'm using this… Continue reading Everyday discrimination.
The guide On twitter, two things have been going around recently; first is the above guide for pain, and second the #MyPainDay diaries tag. Upon request, and being a spoonie blog apt for awareness, I have decided to contribute over here. This above guide is SO important. Many disabled and chronically ill folk play down… Continue reading My Pain Day (Dec week 1)
THIS is what Invisibly Disabled looks like*: Spoiler alert if you hadn't realised... it's me. This is me on some days, one would argue like an able bodied person: And on others, here I am: I have chosen to share this picture as on a typical day with mobility aids, it is a stick I… Continue reading Invisible Disabilities Week: My Chronic Life and an introduction to Spoonie Saturdays